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                 "This blog exists to amplify the often unheard voices of its  non-speaking authors, both as individuals and autistics....

Friday, February 3, 2023

Short Time by Miller Laffoon

 



Snow settles on the earth.

Stillness sets in.

Mommy sits near me so softly,

and reading begins.

Soup simmers on the stove.

Cookies are baking.

Another soothing day,

in the making.

Snow softens the world,

and slows its spin.

I dream of this pace,

to forever begin.


In this soft, still time, the world is better.


It slows the madness and stops the chatter.

In this time, the real things matter.

In this time, the world is soft like butter.

The house is full of goodness and clutter.

The house is warm and the fire is blazing.

So many things happening, that I find amazing.

Families together and singing their songs.

The earth is removed from all of its wrongs.

For a simple short time, the world is right.

Oh, how I hope for more snow tonight.


Monday, January 30, 2023

Desires Oracle

 by Ruhi Khanna


I find the game of love,

Less then any accomplishment,

I find the appeal of love,

Calling some to abandon hope.


I find the reign of pure time,

Negative to hilly rocky roads,

I find the stillness of haste,

Makes the cage tighter.


I find the withered roses,

Say the tale of rancid games,

I find the leaning of mind,

Tames the adventure spirit.


I find the kindness of expression

Elevates the humble heart,

I find the lasting noise,

Fills me with gratitude.


Thursday, January 19, 2023

Waves

 By Kaavish Kapoor


“Every wave only gains size by playing in the shallows. Any potential obstacle seems to make the wave stronger. Similarly, people become more resilient with hardship. "



Thursday, January 12, 2023

A Letter to Damar Hamlin from Brielle Stewart

 By Brielle Stewart

 

Dear Damar, 

I am fifteen years old and have non-speaking autism. I am also a huge Bills fan. I was lovingly raised in the shadow of the stadium where I learned to type to communicate. The Bills have always inspired me. They are often overlooked or underestimated. That is what it is like when you can't speak. Damar, I was watching on TV when you got hurt. I began begging Jesus for your life to be spared. When you woke up it was a wondrous answer to prayers. When you wrote your first words I understood how you felt. I cannot speak, but my words reveal I am in here. I have a nationwide circle of friends who type to talk too. We meet quietly on Zoom every Thursday to chat about books. I try to make them all Bills fans. My friends are like the Bills, they never quit. I wish you so many healthy strong days ahead.

Signed

A Silent Fan,

Brielle Stewart


Sunday, January 8, 2023

Motor Loops by J. Haynes

 


Spellers, families, and allies, whether you know the term or not we all are impacted by motor loops. A motor loop is an activity that was learned by the body for various reasons like a preferred task often from childhood, a response that happened while in fight or flight mode, or an overly practiced task like going to the bathroom. In those circumstances, neuronal connections formed to allow it to become easily repeated even when not desired.  Maybe you know how it started, maybe you don't but regardless they are there and can impact our lives in various ways. How can we stop them? I'm going to give you some helpful tips. 

    • Know that your speller wants to stop the loop.
    • Collaborate with your speller on how to approach the loop breaking.
    • Be realistic with your goals
    • Small steps towards your goal are still great accomplishments
    • Be confident in your ability to do it no matter how long it takes. Presume competence in the body.
    • Remember to give yourself grace
    • Collaborate with an experienced practitioner, if possible
    • Have a first step in mind.
    • Frustration breeds failure, it will not be easy.
    • There are tools, like lock boxes and controls on iPads, that can help
    • Use positive self-talk
    • Redirect to something purposeful and age appropriate. 

I hope some of these tips can help get you started.  Everyone's experiences will be different and that's okay. Apraxia is a spectrum that is unique to each of us. You can do whatever you set your mind to. 

Monday, December 19, 2022

Making My Life My Own


by Pablo Hernández 


    Some may believe that my life must have the good things that they want—good things that they believe all people want. Have to remind them that those things are calling to them, but sometimes don’t call to me. Caring people can happily tell me that I should have a job to feel good about myself. Good feelings have to come from inside me. 

    The most appropriate job for me is to write. Other people get a job in a store or a restaurant but those would be impossible for my challenging type of body. That seems like I am picky, but this kind of learning, learning to make my body have some discipline is like asking me to climb the highest mountain every day. 

    Writing make the true life I want so much. I don’t know if I can make money writing, but it is my best vision for the life I want to live.

Wednesday, November 9, 2022

Straight as an Arrow by Aulton Grubbs, 10th grade

 


Finally, it’s the moment I have been fearing for what seems like countless months. I hear them call “Aulton Grubbs”. Though I’m grateful to hear my name, a shiver still runs down my terribly curved spine. It is time to get in my gown and get my IV so Dr. White can cut open my back. 

Mom and Dad help me get ready physically. The emotions are mine to deal with. Mom says, “It will be OK.” Dad says, “My man, it’s gonna work out.” He is less worried than Mom. I am more terrified than either of them. 

One of the mean, cold, cheerless nurses walks into the bland, sterile hospital room. She comes over to check my IV, and asks Mom to explain the procedure in her own words. Mom says, teary-eyed, “Dr. White has to make an incision down his back. He will move the muscle to access the spine. The doctors will screw a straight rod to his vertebrae to make my baby’s back straight again.” I groan inwardly. I’m almost 14–the only baby in the room is her.

The doctors come in, holding the syringes of the medicine that will put me to sleep. “It’s go-time. Don’t cry,” I think. Mom and Dad kiss me and tell me they will see me after the surgery. The medicine works fast. It makes really hazy images. I hear hints of voices and see visions of loving angels helping me stay coherent. My anxiety runs so swiftly, like melted snow into a fast moving stream. I cannot cool down to make the melting stop. Then, everything is black. I am taken into the operating room. My problematic body requires a team of surgeons, because my entire spine is twisted. The special doctors guide my vertebrae into a straight rod. It is screwed in place like jungle gyms are screwed together to hold children’s lives in bold, new play. My spine is going to support my life in a new way. 

The jutting feeling of having the vent removed is one of my first memories after the surgery. The noise of the vent is more terrible than the throat fire, when I notice it breathing for me. The pain is easier to endure than the depressing in…and….out, in…and…out, in…and…out sighs of the machine. Next, I see Mom. Concern floods her face. I look in her eyes and find my calm. I am in pain and I can’t move. My arms are strapped down because I try to pull the vent out of my body. I look around and find Dad. He finally looks at me. He’s been staring at the ground–I imagine to stave off tears. I look at my body. There are gobs of things attached to me. I have no idea how so many things are necessary, but I understand later. The pulse oximeter gives readings on my oxygen levels. It is like a vice on my sensitive index finger. I can always feel it so tight, like it will make my finger fall off.  There is the throbbing, perpetual squeezing of the blood pressure sleeve. Initially, I have four IVs. One is a central line, these are tools used only for the critically ill. They feed into very large veins. And, God, I hate that tube that drains all the blood from the deep, bloody ravine in my back. The blood pools in a bag connected to the tube.  There are too many devices, people and noises. I wish the pain was over already, but I still have a lot of work to do.

Over the next few days, I work on sitting and walking short distances. The pain is unrelenting. I start to struggle with breathing. Mom and Dad hold an oxygen mask over my mouth when my pulse goes hammering away or machines beep, sounding like “hazard, hazard.” They scream in my head, “you are in danger, you are not okay.”

My first treatment with the respiratory therapist is kind of no help. Eager to heal my hurting lungs, I consent to have suction that feels like intense fire licking down my throat. I badly want it to help. The night treatments are less painful because I am drowsy. Many treatments do nothing to stop the inevitable. 

Hours of labored respirations take my life. Wounds stop while I lie there in the hospital where I need many nurses and doctors to revive me. When I start breathing, the light fades. I feel that intense glow described by those who have reported on near-death experiences. It is a light brighter than the sun, releasing me from all pain. I always feel my body is a gift, but I want to see what a back without pain feels like. I have a will to live. 

To my surprise, when I open my eyes, none of the faces belong to my mom. I am struggling and I need her. I gulp for the air that doesn’t flow like I need. Hundreds of minutes pass, it seems, before Mom comes into the room. She is a gorgeous, beautiful sight for me. I know Mom reads the situation and she puts nurses in high regard until they hurt me. 

I lobby Mom to yell at the new nurse back in the ICU. I am pinned down by doctors and pain. I had ripped out one of my IVs because I wanted to go home. The other two died, just as I had. I believe the IVs ran their course with the small veins. They gave me fluid and morphine. That kind of stress on the vein is not sustainable in the long run. I sense I need a good, skilled nurse who loves me enough to get the needle in with one jab. It takes this one four tries. Mom tells her, “Stop and go get someone who knows what in the hell they are doing.” I feel like falling off the cliff again. Yet, I hold on. I get more medicine in my perfectly placed IV and it is a long, terrible night. 

Home seems very far away. I made a goal to make the hospital stay end after five days. Stealing away, in my mind, I take so much strength with prayer and my mind reveals I will need to hold on. 

I rededicate myself to healing my lungs. I can just lay in bed or I can work, and I choose to work. I walk and I will not use a walker. Mom and Dad hold my hands and replace my worry with hope. 

I am able to go home in five days. The surgery solves many problems I had been dealing with. Believing I have enough strength definitely heals me. 


Author statement: I am Aulton Joseph Grubbs. I want to show that like an old town, which is the meaning of my name, I have a legacy to create. I want to share my interpretation of events as an Autistic young man, from Tucson, who spells to communicate. This essay is about a surgery I underwent several years ago.  I feel obliged to show that I’m empathetic due to my personal experiences and that I am intelligent. Generally, I hope to make a statement about all people who do not speak; I have an understanding beyond expectation and I promise to devote my thoughts to writing for the betterment of society.